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A Chance For Change
When Teresa May called a snap general election just seven weeks ago I felt a flash of hope, followed by an overwhelming feeling of apprehension. I desperately want to be part of a society that’s more...
View ArticleFeeling The Difference
The last few weeks have been quite full on. We’ve been working hard on our new stage show, ‘Not I’, which we’re taking to the Edinburgh Fringe in just over a week’s time, and I’ve been experiencing...
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Colour Wheels
My love of wheelchairs is no secret, and it extends to accessories as well – in the past I’ve written with great excitement about new wheelchair bags and push rims. For the last few days I’ve been...
View ArticleInclined To Sleep
I’ve been struggling to get comfy at night for the last few months and I’ve been resorting to precarious piles of pillows to help me reach the ever-elusive pain-free position. Then, a couple of weeks...
View ArticleDaunting Doctors
For the last few months this blog’s been dominated by posts about pain and fatigue. Keeping a balance of funny, serious, poignant, political and practical posts has always felt important to me, but...
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Picture The Pain
For the last year-and-a-half I’ve been experiencing chronic pain in my back and hips which often keeps me awake at night. Despite having written about it a lot, I still haven’t worked out how to...
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Medication’s What I Need
Because of the chronic pain I’m experiencing, which I’ve written about a lot recently, I’m under the care of my local pain clinic and my GP, and I’ve got a range of medications to help me manage the...
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My Monastic Chamber
I had a visit last week from my occupational therapist (OT) whose job is to make sure I have everything I need to be as safe and independent at home as I can be. Over the last year or so I’ve been...
View ArticleA Wee Issue
While it may sound a lot like a ‘crap boast’, one of the things that used to wow my friends was how quickly I could go to the toilet. I used to pride myself on my powerful pissing – I could be in and...
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Commending Commodes
I’ve never had a strong bladder. One of the most agonising experiences of my childhood was trying to hold back an urgent wee on a trip to Ikea with my dad. And the time I pissed in his construction...
View ArticleNew Diagnosis
Over the last two years I’ve been experiencing increasing pain in my back and hips as well as in other joints, including my wrists, ankles and shoulders. Along with this almost constant pain I’ve also...
View ArticleA Close Shave
While we’re here in Portland, Leftwing Idiot, Lily and I are sharing an apartment-sized hotel suite. I wrote the other day about the difficulties I’ve been having weeing and the bladder stimulating...
View ArticleLaughs From The Past
Earlier this evening Leftwing Idiot and I were chatting on the phone when he said something that made me draw breath. For a moment it felt like my brain stalled, jarred by a sad truth in an ordinary...
View ArticleFixed Stare
A couple of days ago I was waiting to pick up some medication in a busy hospital pharmacy. There was a boy aged about nine also waiting. I pulled up in my wheelchair and waited nearby. The boy couldn’t...
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Manchester Rotary Igloo
I’m not sure if or when this post will make it onto the website. I’ve not got a lot to say and what I do have is pretty vague and personal. But I feel compelled to write, so I’m just going to go with...
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Body Cocktails
I’m currently on holiday with Fran. We’re staying at an all-inclusive resort in Spain with a large pool, clean accessible rooms, delicious food and drink available throughout the day, and it’s idyllic!...
View ArticleTens Machine
My body’s buzzing again, but not with the sensation of my bladder buzzer. This time it’s a new device that I’ve just been given by the pain clinic. I wasn’t able to use it straightaway because I’ve got...
View ArticleMy In Between Body
A few weeks ago I had an MRI scan of my back that identified a couple of issues. I then went on holiday, and last weekend was dominated by my birthday celebrations. During this time the scan and the...
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Water Works
My neuro urology appointment (a specialism within medicine that looks after how the bladder and brain work together) got off to a very wet start this morning. But the liquid being spilt wasn’t wee, it...
View ArticleWaiting Room Lows
This morning my support worker Ellie and I were in the waiting room at the specialist neurological hospital I go to. I was there to have a nerve conduction test, which turned out to be a pretty intense...
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