A Routine Hurdle
I’ve had issues with my bladder for a long time, but just over a year ago they intensified. Since then I’ve been seeing a specialist neuro-urologist (neuro-uro), and with his help things have got a lot...
View ArticlePad-emonium
A few weeks ago I wrote about my tricky appointment with the local continence nurse. I was there to get a prescription for pads to help me manage some of the issues I’ve been having with my bladder....
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Waiting Room Highs
At the end of last year I wrote about being laughed at and mimicked while in a hospital waiting room. Today at the same hospital I had a completely different and very lovely experience chatting to two...
View ArticlePad Ripping Fun
I’ve written a few posts about my on-going bladder issues and about how wearing pull up incontinence pads helps me manage this and feel more confident. There’s one slight issue though. It’s not their...
View ArticleA New Spring In My Step
I’ve always been a big fan of bouncing. Jumping up and down on the spot was something I did from a very early age and it was probably a very early motor tic. Despite having pretty rubbish coordination...
View ArticleFlipper Fun
My two year old niece Bean looked at my feet and said: “No, Aunty Touretteshero, not needed.” She was right of course; I didn’t really need to be wearing flippers in the house, though as a wheelchair...
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Wonky Frog Legs
Last month I wrote excitedly about my new legs, not my actual legs but the new shock-absorbing frog legs that NHS wheelchair services were testing on my chair. They’re brilliant and make for a much...
View ArticleNah, Nu-nu-nu-nah, Nu-nu-nu-nah, Nu-nu-nu-nah, Nu-nu-nausea
For the last few years I’ve been struggling with feeling sick a lot and there was a long period when I used be sick every time I ate anything. A few months ago a dietician at my local hospital put me...
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Disruption Equation
I’d had a really disrupted night. My pain level was exceptionally high and didn’t respond to any of the things that usually help, so I’d been awake since the early hours desperately trying to get...
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Intervention Round-Up Reloaded
I’ve tried to manage my tics a number of different ways over the years and one of the most effective for me has been through practical solutions and interventions that make life easier and safer....
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My Brilliant Blue Body
I’ve written a lot about my love of wheelchairs and what an important role they play in my life. There have been times when my chair’s been broken or I haven’t had the right equipment, and as a result,...
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A Decade of Fear and A Moment For Hope
Over the last decade, just existing as a Disabled Person has felt like a political act. Everything I do is directly affected by the political decisions of people who’ve never met me. There’s the social...
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Mummy Is A Doctor - A Story for Beans Everywhere
My niece Bean is almost three. Her mum is my sister, regular readers know her as Fat Sister, a name my tics came up with many years ago while she was on a diet. Fat Sister is a doctor at a large London...
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Waves of Worry
I consider myself to be a pretty calm and rational person, but it’s the early hours of the morning and I’m struggling to clear my mind of worries. This is after a day of being hit by waves of anxiety...
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While You Were Washing the Dishes
My sister is a hospital doctor. She lives across the road from me with her husband King Russell and my niece Bean. They’re less than a hundred metres away and you can even see my place from their top...
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Survival of the Crip-est
In a matter of weeks life across the world has changed dramatically, and like most people I’ve been trying to adapt to the uncertain times ahead. While many people are focused on navigating the...
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Survival of the Crip-est - 28 Days Later
A month ago, at the start of lockdown, I wrote about the huge amounts of extra time and labour I was having to expend just to meet my basic requirements for safety, health, nutrition, finance and...
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‘I’ve Been Glimpsed!’
This evening, for the ninth time, people across the country stood on their doorsteps or leaned out of their windows and make noise in solidarity with people providing care during the pandemic. This...
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Understanding The Risks
Content warning: This post contains descriptions of medical and social risks affecting disabled people that you might find distressing. I got a call from my local Council’s ‘COVID-19 Support Team’...
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Happy Birthday NHS
The National Health Service (NHS) is 75 years old today and this post is a celebration of the complicated, humane, and embracing service that’s looked after me for almost forty years. I can’t imagine...
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